This is the first post of what I hope will be a continuing feature on my blog. This feature is called Ask John. I will answer questions people ask about me. The questions will come from Facebook friends, questions posted in the comments section on my blog, through my e-mail, or other sources. These questions can be mundane, philosophical, profound, controversial, etc. I have already received questions, which I am in the process of getting around to answering. If all goes well, I will post a question and my answer every Friday. I will not mention the names of the questioners, just the questions. Keep the questions coming.
What has been the most challenging part of living with (Duchenne) muscular dystrophy as a child and now as an adult?
The most challenging part of living with Duchenne muscular dystrophy as a child was trying to fit in with my peers. It was a challenge since most of my peers were non-disabled, and I could not physically do many of the things that they were able to do. Also, some of my peers were probably unsure about how to deal with me and my disability.
The most challenging part of living with Duchenne muscular dystrophy as an adult has been meeting women who can see past my disability, and would want to be in a relationship with me. I have women friends who can see past my disability. I value these friendships, but they lack the constant companionship and deep bond found in a relationship.
3 comments:
John, I am so happy that you have decided to do this Ask John project. You are open and courageous, and I don't say that because of the DMD you have lived with that sets your life apart. It's because of what you carry in your soul. It shines through. For my part, I always valued your love of music and my first awareness of music as a child is connected with you. For example, it is almost impossible to hear Zeppelin and not think of listening together at your house. It's just kind of imprinted that way for me. For some reason, this is particularly true of "In Through the Out Door."
I am also very happy that you decided to have this part of your blog. I always enjoy what you post, I really appreciate it that you take the time to do this and be consistent with it. I tried to have a blog but I was not really consistent with it, for some reason I just stop posting, you have motivated the to open up my blog and be more consistent with it. I'm looking forward to your future posts of Ask John.
Which I had some sage advice when it comes to women...but I'm still working on figuring that species out myself. :-) Rod will be getting you the some of the videos and photo's of your Living Legacy Award ceremony, once we get them. So proud of you, John!
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