Tuesday, March 28, 2006

About Me

I am a person with a disability: Duchenne Muscular Dystrophy. It didn't come upon me suddenly--I was born with it. I was not expected to live past the age of fifteen, but now at age 37 I am still ticking. At age eleven I ended up in a wheelchair; my legs had become so weak that I was no longer able to walk or stand. When I was 26 I was trached and hooked to a ventilator. The ventilator assists my breathing. Without it, I would not be here today. Modern technology has given me, and others like me, a new lease on life. I am thankful to live in a country that has made this possible. Every birthday I celebrate is a personal victory over my disease.

It may seem to some people that I don't have much quality of life. I beg to differ. Although I am unable to walk, have limited use of my hands, and need a vent to breathe, I can describe my life as relatively content. There is much for me to live for: my family, good friends, spending time with my niece and nephews. I try not to dwell on what I can't do, but focus instead on what I can do. I try not to dwell on the past or the future, but live in the present. As Eleanor Roosevelt said: " Yesterday is history. Tomorrow is mystery. Today is a gift."

7 comments:

Sterling12 said...

Nice Letter Uncle John!!!!!

Thanks for Mentioning Me...

I Love You, Sterling

Dallas Rose said...

I love you Uncle John!

Dallas Rose

Jeff Herrman said...

Hi John,
Your website is awesome!

You have always made me proud to be a Herrman!! (sorry, only one "n" on this side of the family..)

With Love from your Cousin Jeff

Lynette said...

John,
You don't know me, but I am a friend of your sister Bibbi. She has spoken very highly of you! While doing so, she has conveyed by merely her expressions how deeply she cares for you and how proud she is of you.

I am extremely moved after reading the story you wrote and think your courage is amazing. You have turned your dissability into a minor obsticle and have instead chosen to see what is truly important.
Thank you for your inspiration and for shedding a little light on my day! Sincerely, Lynette Moore

Jean Conner said...

Jean Conner

What a great Hero you are to your Neice and Nephews. John you are a very special person and your outlook on like is so uplifting. What a nice piece you wrote about your friend. Everyone needs friends like you, Love, Jean Conner

bronwyn said...

Hi John,

I have not seen you in a long time. Do you remember me? I am so impressed by your blog. You are truly an inspiration to all of us. Thank you for taking the time to write it.

This is a very difficult time for you. You are in my thoughts and prayers. If anyone can fight this...you can. Your family and friends are counting on you. They love you so very much. Be STRONG!

With Love and Admiration,

Bronwyn

HollisCarney said...

Hi Johnny ~ it's me Holly Carney ~ you make me never want to complain about my "problems" again! You have been on some journey.

I prayed a lot for you last year when you were in the hospital. My brother, David, was there too! Yes, same doctor even. I call him Dr. Dapper (not Eiseman) cause I think he's hot! (It's okay - my husband knows - tee hee) You and my brother were next door to each other and it was great comfort having your parents and Bibbi there for me too! Who ever would have thought?

Your family has always been special to me and will always be like family to me and John and our children!!! Especially since J.D. and Sterling were in diapers together!

I love you ~ can't wait to rock out with you at the Connor Casa!!!! Happy early Birthday! May God continue to use you to bless so many others!!

love,

Holly Carney