Friday, February 28, 2014
This is the first post of what I hope will be a continuing feature on my blog. This feature is called Ask John. I will answer questions people ask about me. The questions will come from Facebook friends, questions posted in the comments section on my blog, through my e-mail, or other sources. These questions can be mundane, philosophical, profound, controversial, etc. I have already received questions, which I am in the process of getting around to answering. If all goes well, I will post a question and my answer every Friday. I will not mention the names of the questioners, just the questions. Keep the questions coming.
What has been the most challenging part of living with (Duchenne) muscular dystrophy as a child and now as an adult?
The most challenging part of living with Duchenne muscular dystrophy as a child was trying to fit in with my peers. It was a challenge since most of my peers were non-disabled, and I could not physically do many of the things that they were able to do. Also, some of my peers were probably unsure about how to deal with me and my disability.
The most challenging part of living with Duchenne muscular dystrophy as an adult has been meeting women who can see past my disability, and would want to be in a relationship with me. I have women friends who can see past my disability. I value these friendships, but they lack the constant companionship and deep bond found in a relationship.